Home at Last

We arrived home late Saturday afternoon. We didn't end up leaving the Ronald McDonald House until close to 1 pm. Then we stopped at Greg's sister's house to pick up Kyler. He had been there for the past couple days. So, the day kind of got away from us. When we got home, we found a welcome home sign on our garage door left by some good friends of ours. So sweet! What a way to come home. Our neighbors watched us arrive and were anxious to see Caden. So he met a couple neighbors that evening. Then, we had some other great friends bring us dinner since they knew there wasn't much in the house for us to eat. What a blessing!

Our first night at home in our house with our whole family together was wonderful. Kyler was so excited to have Caden with us, he wanted to read him bedtime stories. It was pretty sweet. And, Caden slept great, only getting a little fussy a couple times during the night but not ever really waking up much. That's one advantage of doing feeding through a g-tube. Caden doesn't really have to wake up to eat.

Sunday, I think we tried to take on too much around the house. We had a LOT of things to unpack, but we also needed to rearrange some furniture because we told Kyler he was going to be sleeping in a “big boy bed” now. So, that being promised and Kyler being excited about it, we needed to get the beds moved around. So, the rest of the day was spent trying to get Kyler's room in order so he would have a place to go to bed Sunday night. That all worked out, but not without some stress. Caden had a bit of a fussy day, not wanting to be put down, ever. But of course, we're very happy he likes to be held! And, we are very happy we can hear his cry. So we are thankful about things like that as well.

Sunday night Kyler went to sleep in his “new” bed and slept great which is always a blessing to us! He now sleeps in a queen bed that used to be our guest bed. He looks so little in such a big bed. : ) It's cute though and he's excited about it. Caden had another good night of sleep which is great for us.

Monday morning was a bit stressful for me though. Caden had an appointment with the pediatrician at 10:15 and Kyler had a therapy appointment at 11. A good friend of mine was able to take Kyler to his appointment and she was planning on being at the house around 9:30 so we could transfer the car seat and I could get Caden to the doctor. But it was my first day on my own trying to get ready with two kids. One of Caden's feeds got messed up because I forgot to unclamp the g-tube extension and it ended up “feeding” his bed and not his belly (1st time I've done that... hopefully the last). So, that meant I had to do another feeding with him which just took more time and put me behind schedule. I guess that's what I get for trying to rush around and get it ready. Hopefully I'll get it all figured out one of these days!

Definitely a transition, to say the least. At Caden's appointment, he weighed the same as when he left the hospital. It is good that he didn't lose any weight, but they really want to make sure he's gaining weight. So that is our goal right now. We see the cardiologist tomorrow and look forward to talking with him and getting input from him. We'll try to keep you updated. I definitely don't have as much time to do these entries as I did. But hopefully things will settle down a bit once I get into some kind of routine. Just haven't quite gotten there yet. Thankfully we have people bringing us meals three-four times/week so that will really help us out! Thank you for your prayers as we adjust to life at home with all is incredible joys and stresses.