Update

After talking to the nurse practitioner this morning, they feel that Friday is a reasonable discharge date for us!!! We are so excited! They are just working on getting all our supplies delivered to us here at the hospital so we can practice using everything before we go home and are on our own. It will be an adjustment having to administer all the meds and do all the feeds by ourselves, but I don't think it should be too difficult. Just a matter of transitioning.

Caden did a swallow study with the OT today. They gave him a thickened milk to see how it moved down his throat and esophagus. He did great with the thickened milk but when they tried it with thin milk like the consistency of breast milk, he didn't do as great. His vocal cords are still not completely protecting the airway so he aspirated the thin milk. So, for now, they will work with him on thickened milk by mouth. And whatever he doesn't drink by mouth will be given via the g-tube. I'm really happy that he is at least able to do something by mouth because that definitely gives us something to work with. And, it means he will probably be able to do full feeds my mouth at some point. It might just take awhile.

We are waiting to hear about when or if they will do the CT scan. In talking to the doctor, it sounds like Dr. Reddy has some concerns because they have to do some sedation in order to get the pictures they need. So the attending on 3W will be talking with him to discuss it further. If they do it, it will likely be Wednesday or Thursday.

The other thing I forgot to mention yesterday is they decided there is NOT a pneumothorax. This is good news for us as well. Things are definitely looking up. They are going to be working on weaning his oxygen off and weaning his Lasix down. After that we should be good to go. Positive news today for sure. Hopefully it continues that way.