Sunday, February 26, 2012

Ice Skating

Sunday, February 26 we went to the birthday party of two of Kyler's classmates: Lexi and Megyn. They share the same birthday of March 1 and decided to celebrate together. Lexi just so happens to be the niece of my college roommate, Holly. :)


It was a great opportunity for us to take both the kids ice skating for the first time. I really didn't think Caden would want to skate, but once we got there, he didn't want to be left out and wanted to try it. Luckily for us, they had ice skates that were his size since he has very tiny feet.

So off we went... Kyler used the balance bar off and on for support but still struggled to maintain an upright position. Greg and I took turns supporting Caden so he didn't fall. But I have to say that we all had a really fantastic time! Kyler had such a great attitude about the whole thing. He is often hesitant to try new things and if he fails (in this case, falls), he often does NOT want to try it again. But today he kept getting right back up and trying again every time he fell down. He did plenty of falling down, but each time, he got back up and kept going. One time he hit his head on the ice pretty good and I told him he could go sit down and take a rest. But he wiped the tear from his cheek and said he wanted to keep going. My heart was bursting with pride! I can't believe how grown up he seemed at that moment. 

On the ice for the first time;
using the balance bar for support

My turn holding Caden up

Greg's turn with Caden

Caden taking a break from skating

My long-time friend, Holly

Holly took this pic of all of us on the ice together
It's a little blurry but still cute

The happy family on ice skates!  :)

This was truly a wonderful time for all of us. And, the icing on the cake for me was getting to spend time with my friend, Holly, also. :) I would love to do something like that again. Not sure it will happen this winter, but maybe next year.

Saturday, February 25, 2012

Look Dad! I Can Feed Myself!

Caden's feedings have not been going very well when I feed him, which is most of the time. However, when Greg feeds him, it seems to go amazingly well, which is more than frustrating to me! I don't know if that means Caden and I have just developed an adversarial feeding relationship or what. But when Greg does his meals, he actually ends up doing a lot of the feeding himself. It's great! I only wish he would do this at all of his meals because then I would feel like we were making forward progress instead of remaining on the plateau we've been on for so many months now.


I'm including a video so you can see him feeding himself. I am hoping this means I have something to look forward to in the future. Of course, I also wish it meant he was doing this all the time because he is obviously capable! 


Friday, February 24, 2012

Walla Walla Children's Village

When we first moved to Walla Walla, I needed to find a pediatrician for the boys. This was a pretty scary thing for me because I knew I needed to find a doctor who could deal with their congenital heart defects, and deal with Caden's chronic lung disease and respiratory issues. I needed someone who would be willing to listen to me and trust my gut and my instincts because I am their mom and I know them better than anyone.


I decided to bite the bullet and I called the pediatric office owned by the hospital where Greg works. I explained to the person who answered the phone that we just moved here and I needed a pediatrician and gave her a little background information so she understood where I was coming from. I asked her who she would recommend for my kids. She said if it was her kid (I love it when people think about who they would want their own child to see), she would choose Dr. Joseph Wren. I decided to go with her recommendation and see what I thought about him at our first appointment. I figured I could always change to someone else if I didn't like him.

When I first took Caden in to see Dr. Wren, I went through his extensive medical history and all his congenital defects, etc. I asked what to do if Caden went into serious respiratory distress (of course I'm hoping that will not be an issue). In Sacramento, I would call his pediatric pulmonologist office and get in immediately. But since there are ZERO pediatric specialists in Walla Walla, that's not an option. And, if he's in bad shape, driving to Spokane (three hours in the car), isn't really an option either. He told me the pediatricians were the ones to handle the hospital admissions for kids. I tried to kindly tell him that we avoid the hospital AT ALL COSTS! That is our very last resort and we do not want to go there unless it is absolutely necessary. I told him we have an oxygen concentrator at home, as well as a nebulizer and suction machine and I am very comfortable treating Caden at home as long as I have the necessary medications. I also let him know that I understood that he needed to get to know me and be able to trust that I know what I am talking about and know how to handle these kinds of situations.

By the end of the appointment, he told me he's never had another patient with oxygen at home, or one that he felt comfortable treating at home vs. being hospitalized. But he told me after talking to me, he said he would be very comfortable with me treating Caden at home if the need arose. I took that as a big compliment. :) But overall, I really like him and am so happy we found him. He was very proactive about making sure we had referrals to all the specialists for Caden so we could get established with each of them. He was great with Caden and I know we will love having him for our pediatrician!

The following week I took Kyler in for his first visit so Dr. Wren could get to know him as well. When he came into the exam room, he asked me if I worked outside the home and if I would be interested in joining a committee he started. This committee is working on establishing a “children's village” in Walla Walla. This is a place where children with special needs will be able to receive services such as physical, occupational or speech therapy. A place where pediatric specialists can come once/month (or more often if necessary) to see patients here so we don't have to drive to Spokane or Seattle. And many other things.

I was so excited about the project that I said “YES!” He said he had a committee meeting a couple days after he met me and Caden and he told the rest of the people on the committee that he had someone he really wanted to join them. He thought I had valuable insight to offer since I am new to the area and am not really familiar with any of the resources that are available. And, because I came from a community where I had every resource available he thought I could be very helpful in making suggestions for things they should think about.

I have to say I am really honored that he asked me to be on this committee. Typically it meets once/month for an hour or so. But in February, they had a facilitator coming from Seattle to help get the ball rolling so things could start moving along. That meant they scheduled an all-day meeting on a Friday. I wasn't sure how I was going to swing that with childcare for Caden! And, Kyler gets out of school at noon on Fridays. So I didn't think I could make it. But I talked to Dr. Wren and he suggested I call his daughter and have her babysit. She is 20 and living at home taking some online classes right now so her schedule is pretty flexible. I called her and she was willing to do it. So she watched Caden in the morning, picked Kyler up from school, fed both the kids, and did an overall great job!

Having her here allowed me to attend the full day meeting and really get a better understanding of what they are trying to create and how I can be the most helpful. By the end of the day I was pretty excited for this project and I am so happy to be involved in something in my new community. I can't wait to see how this all unfolds, although it will probably take several years since it is in the very early states right now.

Please pray for this project and that things will move along smoothly. Thank you!

Wednesday, February 15, 2012

Valentine's Party

For Valentine's Day, Kyler's teacher arranged to have a gymnastics party at the University's gym just down the road. Her husband is the gymnastics coach at the academy (which is next door to Kyler's school) and they use the University gym for practice.


The kids all walked to the gym together. Then they did some stretching exercises with the academy gymnastics team. They were divided into four groups and rotated through the gym doing various activities. Kyler's first rotation was the rope swing. He loved that! Then he did the trampoline run (not sure what it's actually called – watch the video below to better understand!). After that, they moved onto the obstacle course which included crawling through a tunnel, doing somersaults down a sloped wedge, and jumping over things. Lastly they worked with the gymnastics team on partners and group gymnastics. This included things like the kids standing in the hands of one of the academy boys as he laid flat on his back on the floor and lifted them up (kind of like a bench press but with the kid's feet in their hands). 

Stretching...

And more stretching...

At the end of the party, the kids were tired!


It was a lot of fun to watch all the kids participate. Caden even got to do some of the activities and he thought that was great fun! :) A good day was had by all!

Tuesday, February 14, 2012

CHD Awareness Week

February 7-14 marks Congenital Heart Defect Awareness Week. Last year, our Mended Little Hearts (MLH) support group in Sacramento put on a big community event to bring more awareness of our precious kids who have fought so hard. It was so great to be involved in something like that.


This year, I feel like the week kind of slipped by me without much notice. I suppose that is because we moved and I no longer have my support group to be involved with. I have been filling my time with unpacking, getting the kids settled into new routines, etc. But that makes me kind of sad. I miss being involved in a support group. I want to be a part of a group that helps each other but also brings awareness to the community around them.

I have made a couple contacts with other families in my small town who have children with CHD's so I suppose that is a start. Maybe this small town doesn't have a need for a support group. But I still feel there needs to be more awareness. I have another year before this week comes around again, so hopefully by then, I will figure out where/how to be involved!

In the meantime, our whole family wore red on the American Heart Association “Go Red” day – February 3. Caden, Kyler and I all kind of look alike. But that's because we all wore our Mended Little Hearts of Sacramento t-shirts. And, since we live where it's cold and it snows, we had to wear a long-sleeve shirt underneath so we wouldn't freeze! ;)





I appreciate your prayers as I look for a place to be involved and a way to bring awareness to CHD's in my small community.

Sunday, February 5, 2012

Vickie's Memorial

I found out about a week ago that there was going to be a memorial for Vickie Altman, Kyler's teacher from Sacramento, in Portland on February 4. I was really sad I wasn't able to make it to the memorial service held at our church in Sacramento so when I heard about this one, I wanted to go. Portland is about four hours away and I have a sister who lives there so I knew we could make a weekend trip out of it.


We left after church Saturday morning and drove straight to the memorial service. We didn't know very many people there, but we found a place to sit as the service was starting. The majority of the people there knew Vickie from many years ago when she used to work in Portland. I'm not saying they weren't sad or weren't grieving her loss, but their memories of her were more distant than mine. I was one of very few people who was sobbing throughout the whole service. I felt kind of foolish; like everyone was looking at me. But my sorrow runs very deep and she was part of our lives so recently. It still doesn't feel real that she is gone... :(

At the end of the service, they opened up the microphone for anyone who wanted to share a memory of Vickie. Greg got up and told everyone about Kyler's last day of school in December when the whole class prayed over him, including the little boy whose parents didn't believe in God. And, he told them about Vickie and the other kids conspiring to make sure Kyler was the student teacher of the day on his last day. Those memories are so special for us and we wanted her family to hear them.

When everyone was done sharing, Greg and I had an opportunity to talk to Vickie's daughter and tell her how much we loved Vickie and how much we miss her. She has heard that a lot lately because everyone who encountered Vickie was touched by her in some way or another. She impacted so many lives and I am so sad she is gone. I pray her light shines in all those who knew her so that we can continue to love others the way she loved each of us. I can't wait for the glorious day when we will all meet again in Heaven! We miss you Vickie! 

My last picture of Vickie:
with Kyler on his last day of school before we moved

Friday, February 3, 2012

Volunteering in Kindergarten!

Yay! I am so happy to say that I was able to start volunteering in the Kindergarten classroom every Thursday starting on February 2! I found a college student who had the morning off of classes so it worked out perfectly. :)


Thankfully there was another mom in the classroom who was able to show me the ropes. There is a lot to know about helping. I have to learn the teacher's system for grading papers, her routine for going over the math and reading assignments, find out where everything is located, etc. I am so excited that I get to make this part of my regular routine. I was never able to do it in Sacramento because I was too busy with therapy appointments for Caden. But I actually have the time now and I love it!

Thursday, February 2, 2012

My Birthday

As I get older, my birthdays seem to come and go without much fanfare. And, honestly, that is okay by me. This year, Greg and I went out to dinner the night before my actual birthday because that is when we had childcare available. But on the day of my birthday, we took the boys and went to Dairy Queen. :) Nothing says “birthday” like a little ice cream! We had a nice family evening out and when we got home, we put the boys in bed and Greg and I watched a movie. I am so blessed by my family!

Greg and the boys waiting for the ice cream...

Had to show a picture with the ice cream to
prove we were actually at DQ!  ;)

Wednesday, February 1, 2012

100 Day Celebration

February 1 marked 100 days of school. Kyler had been looking forward to this day since he started school at Orangevale in Sacramento. He was SOOO disappointed when we moved and he was going to miss the 100 day celebration there. When we found out they were having a celebration at his new school we were both very happy. :)


The Kindergarten class was invited to join one of the 1st/2nd classes to have a party with them. Caden and I joined them for the celebration. Each of the kids was asked to bring in 100 of any given item. Kyler brought 100 pennies. But the items varied greatly: from cheerios to rolls of toilet paper!

Each of the Kindergarteners were paired up with a “buddy” in the 1st/2nd class to work on a project. They had 100 colored circle stickers they used to make a picture together. When they were done with that, they took shape blocks and formed pictures out of them. It was a fun afternoon and it made me glad I am a stay at home mom so I can easily attend these kinds of school parties. :)

Kyler and his buddy counting out 100 stickers

Jackson and Kyler

The final sticker picture

There's the 100 rolls of toilet paper!  :)