Waiting

Nothing too much happened today. We still haven't heard anything about date/time for Caden to have surgery to get his G tube. The nurse practitioner told me tonight we should hear something on Wednesday morning in regards to surgery date. Otherwise, he pretty much remained the same. Shortly after he gets his medications his heart rate jumps up and stays up for an hour or so. The doctors don't seem to be too concerned with it. However, last night after receiving his meds, he had an episode of PVC's along with the high heart rate. So, that concerned them but he hasn't repeated the episode.

We asked again about the results of the genetic screening they did to see if they had come back. This morning in rounds, they didn't know. But this evening, one of the doctors told me the tests had come back normal. So, at this point, there isn't a syndrome attached to Caden's defects. The nurse practitioner told me that 75% of incidents of defects are purely random and occur for no reason at all. 10% are genetic, and 15% are exposure to something in the early stages of pregnancy, usually some sort of medication taken by the mother in the first few weeks. So, the vast majority have no explanation as to why the defect occurred.

Kyler had another good day today. He had a great time at preschool and really didn't want to leave. I literally had to drag him out kicking and screaming. But the promise of taking him to the model train at the hospital calmed him down. He sat with us fairly quietly during doctor rounds and then went back to RMH with Greg and had lunch and took a nap. But most of the time he wants to play with the trains at RMH. He will spend hours there if we let him, he's just slightly obsessed.

We'll keep you all posted in regards to when Caden's surgery will be as soon as we find out. We want it to be very soon so we can continue forward progress and not just be waiting around. But we need to remember God's timing is perfect and this is in his hands.